10/19/12

Struggle

So frustrating when your child is denied something they so badly need.

Caitlyn has been denied her needed surgeries from the places we have been referred to.  Why do that to a needy child?  Shriner's Hospital will not accept Caitlyn because her health is "too involved" and she requires more care than their facility can facilitate. Okay, that I understand. But then we were referred to another hospital, Children's Hospital and they won't accept her because she has Medicaid.    Like really?   So it has been a back and forth game.  They call with another #, and we get a phone call back with a denial and a referral somewhere else.

We have set up an Indigogo campaign for funding for her. However, 50% of whatever she receives is taxed, and then the site gets a cut for hosting.   Going to try other avenues to get Caity what she needs!  She also needs a new wheelchair & new adaptive equipment, that insurance will not pay for.   Freaking out a little, on the inside.

Lord help me. My patience isn't what it used to be. xo.